Cystinuria Management

Cystinuria is a lifelong condition, in which cystine kidney stones tend to reoccur.1

It is important that you follow dietary advice from your healthcare provider to reduce the risk of recurring stone formation, even with the support of prescription medicine.

For adults and children, you can start by:

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Drinking more water

Drink at least three to four liters of liquids,2 or as advised by your clinic.

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Eating more fruits and vegetables

Eating more fruits and vegetables can make your urine less acidic, decreasing your risk of cystine stones.1

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Eating less salt

Try not to add salt and salt-containing ingredients to your food and avoid salty foods, such as potato chips, French fries, sandwich meats, canned soups and packaged meals.1

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Eating less animal protein

Animal protein is a source of methionine, which breaks down to cystine in your body, and can make your urine more acidic. Eating less animal protein can, therefore, help decrease your risk of cystine stones.2

NOT ACTUAL PATIENT

If these measures are not enough to keep urinary cystine levels low, your healthcare provider may suggest alkalinization therapy to help make your urine less acidic or medication to keep cystine stones from forming, such as VENXXIVA.3

Learn more about VENXXIVARead Living Well with Cystinuria

References

  1. National Kidney Foundation. 2016. Cystine Stones. [online] Available at: https://www.kidney.org/atoz/content/what-are-cystine-stones. [Accessed: September 4 2024].
  2. CystinuriaUK. 2023. CystinuriaUK – Diet – what should I eat? [online] Cystinuriauk.co.uk. Available at: https://www.cystinuriauk.co.uk/diet—what-should-i-eat. [Accessed: September 6 2024].
  3. International Cystinuria Foundation. 2022. Treatments for Cystinuria? [online] Available at: https://cystinuria.org/treatment/. [Accessed: September 9 2024].